God is Good...

Hi everyone this might be a long one but here it goes... some of you know what is going on and others don't so I will update you... my pregnancy with Adilynn went wonderful. At our 20 week ultrasound the doctor mentioned that Adilynn had a small head and long legs but never seemed concerned and just said it should grow. He was so nonchalant about it that I didn't think twice that something could be wrong. Then when she was born labor and delivery went awesome she came one week early which I couldn't have been happier about! She was born about three hours after we got to the hospital and I showed up at the hospital smiling and thought they would turn me away and say I wasn't in labor! But I was already 6 cm dialated! It was really an easy wonderful experience until the doctor on call came to check her out and said she had a small head something called microcephaly and wanted to run a ton of tests on her. I was a mess I just was in shock and didn't know what to do. It didn't help that the doctor had no bed side manner and explained nothing to us. He just kept saying he was calling stanford about her and we didn't even know that was the children's hospital we thought it was some research lab that wanted to do tests on her! We decided to let them do all the test which all came back perfectly fine, PRAISE GOD!! She just had a small sized head for her age and no abnormalities or anything. So I thought this meant she was fine and her head would just grow, I thought it meant she didn't have microcephaly, because again no one explained anything to us they just said the test are all fine. Then when she was about three months our pediatrican recommended us to go to the stanford childrens hospital to see a specialist. We saw a craniosentosis doctor who said her skull was fine and we needed to see a pediatric neurologist. That was right before Thanksgiving so we had to wait till we moved to Colorado. We went to see my brother graduate from boot camp and had her appointment set up for two days after we would return from that. While we were getting ready to board for our last flight back to Colorado I was holding Adilynn in the airport and Justin went to the restroom. This lady came up to me out of the blue and said, "Don't believe what the doctors tell you, my son has cerebral palsy and they said he would never do all these things, well he has proved them all wrong and started college this year. Just always remember your child is perfect. I just felt like I was suppose to tell you that." Well I was sort of annoyed because I thought this lady has nerve she must think there is something wrong with Adilynn and there isn't ! Well I looked for her after we got off the plane and couldn't find her (I think she might have been an angel or she just didn't have any baggage!). And what do you know two days later we are at the doctors and he tells us that Adilynn will never go to normal school, have learning disabilities and learn to a point and won't learn anymore. No hope, no help, no tact, NOTHING! Then just sat there in silence forever, during which I turned to Justin fighting back my tears and said, "I do not believe him!" Then proceeded to tell us we needed to sedate her to get her an MRI so we would know if our future children could have this. Needless to say I was a mess that day because this came as a shock to me. I did not research micro because I thought she didn't have it since all her test came back fine. Since that appointment I have found our about an early intervention program for babies to help them learn better and joined a support group that has helped a lot and made me realize we are not alone in this. There is even a foundation and a convention coming up this summer. I know this is long so I will wrap it up but I just wanted for inform everyone and ask for everyones prayers. But so far Adilynn is doing wonderful has met all her milestones, is trying to roll over, coos and talks all day, scoots backwards and is the biggest joy more than I could have imagined!!! She is my angel and I believe that God is the bigger than all this and has a PERFECT PLAN for her life and ours as her parents. Which we feel SO BLESSED to be!!! Love, Christina